BETHESDA CONFERENCE REPORT
32nd Bethesda Conference: "care of the adult with congenital heart disease"1
Gary D. Webb, MD, FACC, Conference Co-Chair and
Roberta G. Williams, MD, FACC, Conference Co-Chair
This Conference, sponsored by the American College of Cardiology, was held at Heart House, Bethesda, Maryland, October 2–3, 2000.
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Participants
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- HUGH D. ALLEN, MD, FACC
- Chief, Pediatric Cardiology
- Physician-in-Chief
- Columbus Children’s Hospital
- 700 Children’s Drive
- Room ED622
- Columbus, OH 43205-2696
- JOSEPH S. ALPERT, MD, FACC
- Professor of Medicine
- Head of Department of Medicine
- University of Arizona
- Health Sciences Center
- 1501 N. Campbell Avenue
- Tucson, AZ 85724-5035
- JACQUES I. BENISTY, MD, FACC
- Boston Adult Congenital Heart Service
- Department of Cardiology
- Children’s Hospital
- 300 Longwood Avenue
- Boston, MA 02115-5737
- YVONNE BERNARD, RN
- Case Manager
- Division of Pediatric Cardiology
- Vanderbilt University Medical Center
- D2220 Medical Center North
- Nashville, TN 37232-2572
- ALAN C. BRAVERMAN, MD, FACC
- Associate Professor of Medicine
- One Barnes-Jewish Hospital Plaza
- Suite 16419 East Pavilion
- Louis, MO 63110
- National Marfan Foundation
- JOSEPH R. CARVER, MD, FACC
- Senior Medical Director
- Aetna U.S. Healthcare
- 980 Jolly Road
- Mail Stop U21A
- Blue Bell, PA 19422
- MELVIN D. CHEITLIN, MD, MACC
- Emeritus Professor of Medicine
- University of California at San Francisco
- San Francisco General Hospital, Room 5G1
- 1001 Potrero Avenue
- San Francisco, CA 94110
- JOHN S. CHILD, MD, FACC
- Professor of Medicine
- UCLA School of Medicine
- Division of Cardiology
- Department of Medicine
- Los Angeles, CA 90024
- RUTH L. COLLINS-NAKAI, MD, FACC
- President, Canadian Cardiovascular Society
- 15239 43rd Avenue
- Edmonton, Alberta T6G 5R3
- CANADA
- GORDON K. DANIELSON, MD, FACC
- Roberts Professor of Surgery
- Mayo Medical Center
- 200 First Street, SW
- Rochester, MN 55905-0001
- WILLIAM R. DAVIDSON, JR., MD, FACC
- Director, Program for Adults with CHD
- Director, Echocardiography
- Cardiology H047
- S. Hershey Medical Center
- 500 University Drive
- Hershey, PA 17033
- JOHN E. DEANFIELD, MD, FACC
- Professor of Cardiology
- Cardiothoracic Unit
- Great Ormond Street Hospital
- Institute of Child Health
- Great Ormond Street
- London, WC1N 3JH
- UNITED KINGDOM
- RICHARD M. DONNER, MD
- Staff Pediatric Cardiologist
- The Children’s Hospital of Philadelphia
- Division of Cardiology
- 34th and Civic Center Blvd
- Philadelphia, PA 19104-4399
- ANNIE DORE, MD, FRCP
- Assistant Professor of Medicine
- Montreal Heart Institute
- 5000 Belanger Est
- Montreal, Quebec H1T 1C8
- CANADA
- DAVID J. DRISCOLL, MD, FACC
- Professor of Pediatrics
- Head, Section of Pediatric Cardiology
- Mayo Clinic
- 200 First Street, S.W.
- Rochester, MN 55905-0001
- JOSEPH P. DROZDA, JR., MD, FACC
- Principal, Carevergence
- Associate Director, Unity Health Research
- 36 Picardy Hill Drive
- Chesterfield, MO 63017-7127
- SUSAN M. FERNANDES, MHP, PA-C
- Boston Adult Congenital Heart Service
- Department of Cardiology
- Children’s Hospital
- 300 Longwood Avenue
- Boston, MA 02115-5737
- ELYSE FOSTER, MD, FACC
- Associate Professor of Clinical Medicine
- University of California, San Francisco
- Box 0214, Rm. 314A
- Moffitt Hospital
- 505 Parnassus Avenue, M314A
- San Francisco, CA 94143-0214
- JAMES M. FOX, MS, MD
- Cardiology Fellow
- Division of Cardiology
- University of Iowa Hospital
- 200 Hawkins Drive
- Room E318-5
- Iowa City, IA 52242
- MICHAEL D. FREED, MD, FACC
- Senior Associate
- Department of Cardiology
- Children’s Hospital
- 300 Longwood Avenue
- Boston, MA 02115-5737
- VALENTIN FUSTER, MD, PHD, FACC
- Director
- Zena & Michael A. Wiener Cardiovascular Institute
- Mount Sinai Medical Center
- One Gustave Levy Place
- Box 1030
- New York, NY 10029-6500
- ARTHUR GARSON, JR., MD, MPH, MACC
- Senior Vice President
- Dean for Academic Operations
- Texas Children’s Hospital
- Baylor College of Medicine
- 6621 Fannin Street
- MC1-4460
- Houston, TX 77030
- THOMAS P. GRAHAM, JR., MD, FACC
- Director, Pediatric Cardiology
- Vanderbilt Medical Center
- 1161 21st Avenue, South
- (D2220 MCN)
- Nashville, TN 37232-0001
- LOUISE HARRIS, MD, CHB, FACC
- Associate Professor of Medicine & Consultant Electrophysiologist
- University of Toronto Congenital Cardiac Centre for Adults
- Toronto General Hospital
- 150 Gerrard Street West
- Gerrard Wing 3-562
- Toronto, Ontario M5G 2C4
- CANADA
- JULIEN I. E. HOFFMAN, MD, FACC
- Professor of Pediatrics (Emeritus)
- Room M 1331, Box 0544
- University of California
- 505 Parnassus Avenue
- San Francisco, CA 94143-0001
- CHARLES E. IRWIN, JR., MD
- Professor of Pediatrics
- Vice Chair, Department of Pediatrics
- Director, Division of Adolescent Medicine
- University of California, San Francisco
- 3333 California Street, Suite 245
- Box 0503, LH 245
- San Francisco, CA 94143-0503
- JOHN A. JARCHO, MD, FACC
- Medical Co-Director, Cardiac Transplant Program
- Brigham & Women’s Hospital
- Cardiovascular Division
- 75 Francis Street
- Boston, MA 02115
- SAMUEL KAPLAN, MD, FACC
- Professor of Pediatrics
- University of California at Los Angeles
- Heart Center, Suite 330
- 200 UCLA Medical Plaza
- Los Angeles, CA 90095-6946
- RAE-ELLEN W. KAVEY, MD, FACC
- SUNY Health Science Center at Syracuse
- Division of Pediatric Cardiology
- 725 Irving Avenue, Room 804
- Syracuse, NY 13210
- American Heart Association
- HARLAN M. KRUMHOLZ, MD, FACC
- Associate Professor of Medicine & Epidemiology and Public Health
- Yale University School of Medicine
- 333 Cedar Street
- Room IE-61 SHM
- New Haven, CT 06520
- MICHAEL J. LANDZBERG, MD, FACC
- Director, Boston Adult Congenital Heart Group
- Department of Cardiology
- Children’s Hospital & Brigham & Women’s Hospital
- 300 Longwood Avenue
- Boston, MA 02115-5737
- JAMES LANGILL
- 66 Waverly Road
- Woburn, MA 01801
- RICHARD R. LIBERTHSON, MD
- 8 Hawthorne Place
- Suite 110
- Boston, MA 02114
- ARIANE MARELLI, MD, FRCP(C), FACC
- Assistant Professor of Medicine
- McGill University
- McGill University Health Care Center
- 1650 Cedar Avenue
- Division of Cardiology E-500
- Montreal, Quebec H3G 1A4
- CANADA
- JOHN E. MAYER, JR., MD, FACC
- Professor of Surgery
- Harvard Medical School
- Associate in Cardiac Surgery
- Children’s Hospital
- Cardiovascular Surgery
- 300 Longwood Avenue
- Boston, MA 02115-5737
- FRANK X. MCGOWAN, JR., MD
- Associate Professor of Anesthesiology (Pediatrics)
- Co-Director, Cardiac Anesthesia Services
- Cardiac Anesthesia Service
- Children’s Hospital
- 300 Longwood Avenue
- Boston, MA 02115-5737
- PETER MCLAUGHLIN, MD, FACC
- Professor of Medicine
- University of Toronto Congenital Cardiac Centre for Adults
- University Health Network
- Toronto General Hospital
- 200 Elizabeth Street
- Eaton North, 12-224
- Toronto, Ontario M5G 2C4
- CANADA
- ROGER B. B. MEE, MD, CHB
- Chairman, Pediatric and Congenital Heart Surgery
- The Cleveland Clinic Foundation
- 9500 Euclid Avenue, M-41
- Cleveland, OH 44195-0001
- PAMELA D. MINER, RN, MN, NP
- Nurse Practitioner
- Ahmanson/UCLA Adult Congenital Heart Disease Center
- 10833 LeConte Avenue
- Room 47-123 CHS
- Los Angeles, CA 90095
- DOUGLAS S. MOODIE, MD, FACC
- Chairman, Division of Pediatrics
- The Cleveland Clinic Foundation
- 9500 Euclid Ave., A120
- Cleveland, OH 44195-0001
- JOHN W. MOORE, MD, MPH, FACC
- The Heart Center for Children
- Christopher’s Hospital for Children
- Erie Avenue at Front Street
- Philadelphia, PA 19134
- American Academy of Pediatrics
- DANIEL J. MURPHY, JR., MD, FACC
- The Cleveland Clinic Foundation
- 9500 Euclid Avenue, M-41
- Cleveland, OH 44195-0001
- International Society for Adult Congenital Cardiac Disease
- SUZANNE R. PATTEE, JD
- Vice President of Public Policy & Patient Affairs
- Cystic Fibrosis Foundation
- 6931 Arlington Road, #200
- Bethesda, MD 20814
- Cystic Fibrosis Foundation
- GAIL D. PEARSON, MD, SCD, FACC
- Leader, Heart Development, Function & Failure
- Scientific Research Group
- Heart Research Program
- National Heart, Lung & Blood Institute
- National Institutes of Health
- 6701 Rockledge Drive
- Room 9200, MSC 7940
- Bethesda, MD 20892-7940
- National Heart, Lung & Blood Institute
- JOSEPH K. PERLOFF, MD, FACC
- Director, Ahmanson/UCLA Adult Congenital Heart Disease Center
- Professor of Medicine and Pediatrics
- University of California at Los Angeles
- Division of Cardiology
- Room 47-123 CHS
- 10833 LeConte Avenue
- Los Angeles, CA 90095-1679
- REED E. PYERITZ, MD, PHD
- Chair, Department of Human Genetics
- Professor of Human Genetics, Medicine & Pediatrics
- MCP Hahnemann School of Medicine
- 320 E North Avenue
- Pittsburgh, PA 15212-4772
- GRAHAM J. REID, PHD, C PSYCH
- Assistant Professor, Psychology and Family Medicine
- University of Western Ontario
- Asst. Professor, Public Health Sciences & Medicine
- University of Toronto
- SSC 7310
- London, Ontario N6A 5C2
- CANADA
- JOHN G. REISS, PHD
- Director, Policy and Program Affairs
- Associate Professor of Pediatrics
- University of Florida
- 5700 SW 34th Street, Suite 323
- Gainesville, FL 32608
- Institute for Child Health Policy
- SARA ROSENBAUM, JD
- Hirsh Professor, Health Law & Policy
- George Washington University Medical Center
- School of Public Health and Health Services
- 2021 K Street, NW
- Suite 800
- Washington, DC 20006
- ISOBEL A. RUSSELL, MD, PHD
- Associate Professor of Anesthesia
- Dept. of Anesthesia & Perioperative Care
- University of California at San Francisco
- 521 Parnassus Avenue
- San Francisco, CA 94143-0648
- DAVID J. SAHN, MD, FACC
- Professor and Director, Clinical Care Center for Congenital Heart Disease
- Pediatric Cardiology
- Oregon Health Sciences University
- 3181 SW Sam Jackson Park Road
- Portland, OR 97201-3098
- MATHEW SERMER, MD
- Chief of Obstetrics
- Toronto General Hospital
- 200 Elizabeth Street
- Toronto, Ontario M5G 2C4
- CANADA
- SAMUEL C. SIU, MD, SM, FACC
- Director of Research
- University of Toronto Congenital Cardiac Centre for Adults
- Division of Cardiology, PMCC 3-526
- 200 Elizabeth Street
- Toronto, Ontario M5G 2C4
- CANADA
- DAVID J. SKORTON, MD, FACC
- Vice President for Research
- The University of Iowa
- 201 Gilmore Hall
- Iowa City, IA 52242-1320
- LAURENCE J. SLOSS, MD
- Co-Director
- Boston Adult Congenital Heart Service
- Department of Cardiology
- Children’s Hospital
- Department of Cardiology
- 300 Longwood Avenue
- Boston, MA 02115-5737
- JANE SOMERVILLE, MD, FACC
- Professor
- Royal Brompton Hospital
- 81/83 Harley Street
- London, W1N 1DE
- UNITED KINGDOM
- DAVID M. STRASSER, MD, FACC
- Medicor Associates, Inc.
- 104 E. 2nd Street
- Erie, PA 16507
- JON B. TINGELSTAD, MD, FACC
- American Board of Pediatrics
- 111 Silver Cedar Court
- Chapel Hill, NC 27514
- American Board of Pediatrics
- SUSIE C. TRUESDELL, PA, MBA
- Xerox Corporation
- 80 Linden Oaks Parkway
- Mail Stop 0804-02A
- Rochester, NY 14625
- KAREN UZARK, PHD, PNP
- Director of Cardiology Process and Improvement and Clinical Outcomes
- Children’s Hospital Medical Center
- Cardiology Department
- 3333 Burnet Avenue, OSB-4
- Cincinnati, OH 45229-3039
- GEORGE F. VAN HARE, MD, FACC
- Associate Professor of Pediatrics
- Stanford University
- 750 Welch Road, Suite 305
- Palo Alto, CA 94304
- ROBERT A. VOGEL, MD, FACC
- Herbert Berger Professor of Medicine
- Head, Division of Cardiology
- University of Maryland Hospital
- 22 S. Greene Street, Rm. S3B06
- Baltimore, MD 21201-1544
- CAROLE A. WARNES, MD, FACC
- Professor of Medicine
- Mayo Clinic
- Cardiovascular Diseases
- Rochester, MN 55905
- GARY D. WEBB, MD, FACC
- Director
- University of Toronto Congenital Cardiac Centre for Adults
- Toronto General Hospital
- 200 Elizabeth Street
- 12EN 215
- Toronto, Ontario M5G 2C4
- CANADA
- President—Canadian Adult Congenital Heart Network
- Conference Co-Chair
- ROBERTA G. WILLIAMS, MD, FACC
- Chairman, Department of Pediatrics
- KECK School of Medicine
- University of Southern California
- Vice President for Pediatrics and Academic Affairs
- Childrens Hospital Los Angeles
- 4650 Sunset Blvd., MS 71
- Los Angeles, CA 90027
Conference Co-Chair
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Conference Steering Committee
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- GARY D. WEBB, MD, FACC, CONFERENCE CO-CHAIR
- ROBERTA G. WILLIAMS, MD, FACC, CONFERENCE CO-CHAIR
- JOSEPH S. ALPERT, MD, FACC
- JOHN S. CHILD, MD, FACC
- RUTH L. COLLINS-NAKAI, MD, FACC
- ELYSE FOSTER, MD, FACC
- ARTHUR GARSON, JR., MD, MPH, MACC
- THOMAS P. GRAHAM, JR., MD, FACC
- MICHAEL J. LANDZBERG, MD, FACC
- RICHARD LIBERTHSON, MD
- DANIEL J. MURPHY, JR., MD, FACC
- DAVID J. SKORTON, MD, FACC
- CAROLE A. WARNES, MD, FACC
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Staff
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American College of Cardiology.
- CHRISTINE W. MCENTEE, EXECUTIVE VICE PRESIDENT
- MARIE E. MICHNICH, DRPH., SENIOR ASSOCIATE EXECUTIVE VICE PRESIDENT
- CHARLENE L. MAY, DIRECTOR, DOCUMENT DEVELOPMENT AND PRACTICE GUIDELINES
- LISA B. BRADFIELD, MANAGER, DOCUMENT DEVELOPMENT
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Footnotes
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1 The recommendations set forth in this report are those of the Conference participants and do not necessarily reflect the official position of the American College of Cardiology. When citing this document, the American College of Cardiology would appreciate the following citation format: Care of the Adult With Congenital Heart Disease. Presented at the 32nd Bethesda Conference, Bethesda, Maryland, October 2–3, 2000. J Am Coll Cardiol 2001;37:1161–98. This document is available on the American College of Cardiology Web site at www.acc.org. Reprints of this document are available for $5.00 each by calling 800-253-4636 (U.S. only) or by writing the Resource Center, American College of Cardiology, 9111 Old Georgetown Road, Bethesda, Maryland 20814. 
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Participants
Conference Steering Committee